What is patient and carer involvement?
Meaningful patient and carer involvement means sharing decisions with people with lived experience.
Patient and carer involvement is a key element of our vision and strategy. We aim to ensure people with lived experience of stroke and neurological conditions are given opportunities to influence improvements in care provided across Greater Manchester.
We have two approaches to involvement:
1) Our Patient and Carer Group – visit our Patient and Carer Group webpages for further details and how to join
2) Involvement in our quality improvement projects – see below
You can find out more about the network’s activities in the plain English versions of our regular newsletters.
How to get involved in our projects
We supports a wide programme of quality improvement projects across Greater Manchester. You can see some examples, including a full list of current projects and past impacts, on Our Work webpages.
Not all of our projects include patient and carer involvement. However, we have some that are actively seeking support from those with lived experience.
The type of involvement will vary depending on the project. It may include attending a meeting with others, or providing input via email or over the phone. The method will be tailored to the needs of the individual to ensure everyone can be included, especially those with communication or cognitive difficulties.
Current opportunities
National Institute for Health Research HealthTech Research Centre – Brain Injury
The centre runs a research panel for those with lived experience of brain or spinal injury. This includes patient and also their carers or family members and you must be over 18 years old. They are looking for people to help them carry out research and develop new technologies for diagnosis, treatment and rehabilitation in brain injury.
You can find out more about taking part in this flyer.
Find out more and how to get involved
To find out more about our projects and also how to get
involved, please contact our Administrator Karen on Karen.Smith22@nca.nhs.uk. She works 9-5pm Monday to Wednesday and will reply as soon as she can.
To be involved, you should:
- Have lived experience of a stroke or another neurological condition. This could either be as a patient, or as somebody affected such as a carer or relative
- Live in a Greater Manchester borough or in Eastern Cheshire
- Be willing to share your experiences and views to help shape services