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Patient and Carer Groups

Stroke Patient & Carer Group sat around table during a meeting

The involvement of patient and carers is a key element of our vision and strategy. Meaningful involvement and engagement ensures that their experiences and views are clearly heard and influence care provided as part of the Greater Manchester stroke and neurorehabilitation pathways.

We have two Patient and Carer Groups, one for stroke and one for neurorehabilitation (due to start Autumn 2022). We have fantastic Chairs who lead each forum and work with the network team and engage more widely on our behalf.

Mike Carpenter joined as Chair in June 2022. He has been living with multiple sclerosis for over 10 years and is passionate about improving the care for patients with neurological conditions.

Nick suffered a stroke several years ago and continues his journey of recovery. He is keen to support development of services that meet the needs of stroke survivors and their families.

Our Stroke Patient and Carer Group (pictured above) was established in 2016 and has 12 members drawn from across the region; all with different backgrounds and experiences. Nick chairs the Group, supported by Gill Pearl, Chief Executive of Speakeasy who helps facilitate the group and ensure it works inclusively. Each member receives a full induction and meetings occur quarterly, commonly with full attendance.

The network also continues to work very closely with the voluntary sector organisations who are represented at many of our key groups including: BASICGMNAHeadway; Huntington’s Disease Association; MND AssociationMS Society; Neurological Alliance; Parkinson’s UKSpeakeasyStroke Association and Think Ahead.