The involvement of patient and carers is a key element of our vision and strategy. Meaningful involvement and engagement ensures that their experiences and views are clearly heard and influence care provided as part of the Greater Manchester stroke and neurorehabilitation pathways.
We have two Patient and Carer Groups, one for stroke and one for neurorehabilitation. We have fantastic Chairs who lead each forum and work with the network team and engage more widely on our behalf.
Mike Carpenter (pictured right) joined as neurorehabilitation Chair in June 2022. He has been living with multiple sclerosis for over 10 years and is passionate about improving the care for patients with neurological conditions.
Nick Davies (pictured left) suffered a stroke several years ago and continues his journey of recovery. He is keen to support development of services that meet the needs of stroke survivors and their families.
Our Stroke Patient and Carer Group was established in 2016 and has 12 members drawn from across the region; all with different backgrounds and experiences. Nick chairs the Group and each member receives a full induction with meetings occurring quarterly. Our neurorehabilitation group was re established in 2022 and works along the same lines as its stroke counterpart.
The network also continues to work very closely with the voluntary sector organisations who are represented at many of our key groups including: BASIC; Headway; Huntington’s Disease Association; MND Association; MS Society; Neurological Alliance; Parkinson’s UK; Speakeasy; Stroke Association and Think Ahead.